Turning patient stories into hope and resilience One of the main reasons people seek a genetic test is to establish … More
For patients receiving genetic counselling there is often a mixture of emotions and anxieties involved. The very purpose of this service is to help people make sense of who they are, what inherited risks they might face, or even come to terms with a difficult diagnosis.
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More
Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More