Turning patient stories into hope and resilience One of the main reasons people seek a genetic test is to establish … More
Tag: Patient
Addressing inclusion in genetic counselling
For patients receiving genetic counselling there is often a mixture of emotions and anxieties involved. The very purpose of this service is to help people make sense of who they are, what inherited risks they might face, or even come to terms with a difficult diagnosis.
Your Genome, Your Research Agenda
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More
Should patients know that they are research subjects?
Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More