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Tag: Research

Global perspectives on health, research and trustworthiness

Trust is critical to virtually everything we do in life, wherever in the world we are. We trust that when … More

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Data, data sharing, DNA, ethics, Genomics, health data, Research, Society and Ethics Research, Survey

Genomics and big data — who do we trust?

Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More

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Attitudes, Data, Data - Big, DNA, Ethics posts, Genetic Counselling, Genetic Testing, Genomics, Healthcare, Research, Research participant, Survey

“Informed Consent” to edit embryos: what consent?

Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More

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Consent, CRISPR, Embryo Editing, Ethics posts, Genomethics, Genomic Research, Research, Research participant, Society and Ethics Research

New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK

A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More

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Anna Middleton, Data, DNA, Genomics, Legal, NHS, Research, Research participant, Society and Ethics Research, Survey

Genetopia – The compelling stories and tensions behind genetic testing

What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More

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DNA, Ethics posts, Genetic Testing, Genomethics, Genomic Research, Research, Society and Ethics Research
Genetic Disability, Experience and the Sorting Society

Genetic Disability, Experience and the Sorting Society

Are we heading towards a future where genetic conditions are ‘screened-out’? Who gets to decide which conditions are screened for? … More

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Attitudes, DNA, genetics, Genome Sequencing, Genomethics, Genomics, NHS, Research, Research participant, Society and Ethics Research
Developing a genomics workforce for the future

Developing a genomics workforce for the future

The Topol Review, led by cardiologist, geneticist, and digital medicine researcher Dr Eric Topol and facilitated by Health Education England, … More

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Ethics posts, Genetic Counselling, Genomethics, Genomics, NHS, Questionnaire, Research, Research participant, Society and Ethics Research, Survey, Treatment
Articulating the contract between science and people: DNA data sharing

Articulating the contract between science and people: DNA data sharing

A new deal on data: are you with us? For most of us it is hard to unpick the various … More

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Anna Middleton, Consent, Data, Data - Big, DNA, Genome Research, Genomethics, Legal, Research, Research participant, Scientists, Society and Ethics Research
editing-embryos-could-you-would-you-should-you

Editing embryos – Could you? Would you? Should you? Views from Genetic Counsellors

Genetic counsellors sit on the front line of genomics – translating (literally) the science for people who are trying to … More

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Embryo Editing, Genetic Counselling, Genetic Testing, Legal, Research
Your Genome, Your Research Agenda

Your Genome, Your Research Agenda

On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More

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100k genomes project, Anna Middleton, Ethics posts, Genomethics, Genomics, Mental Health, Patient, Research, Research participant, Scientists, Society and Ethics Research
DNA and Big Data

DNA and Big Data: be part of the conversation

The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More

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Anna Middleton, Attitudes, Consent, Data, Data - Big, DNA, Genomic Research, Healthcare, Legal, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
The making of Genetube Project

The ‘Making Of’ GeneTube Project

Here is a little film that gives an overview of what we did in the Socialising the Genome project. Julian … More

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Anna Middleton, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
“If you know it, I’d like to know it too” – involving participants in genomic research

“If you know it, I’d like to know it too” – involving participants in genomics research

This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More

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Genome Research, Genome Sequencing, Genomethics, Genomic Research, Genomics, Mental Health, Research, Research participant, Survey
Lancet publishes Genomethics research - screenshot

Lancet publishes Genomethics research

In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More

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Genome Research, Genomethics, Genomic Research, Healthcare, Lancet, Questionnaire, Research, Research participant, Scientists, Society and Ethics Research, Survey
Jennifer Cham - Screenshot image

Survey talk – guest blog by Dr Jenny Cham

This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More

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Anna Middleton, Attitudes, Genome Research, Genomethics, Genomic Research, Genomics, Incidental findings, Questionnaire, Research, Society and Ethics Research, Survey, WGS
Should patients know that they are research subjects?

Should patients know that they are research subjects?

Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More

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Consent, Patient, Research

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GenomEthics – Archive

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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