For patients receiving genetic counselling there is often a mixture of emotions and anxieties involved. The very purpose of this service is to help people make sense of who they are, what inherited risks they might face, or even come to terms with a difficult diagnosis.
Tag: Ethics posts
Genomics and big data — who do we trust?
Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More
“Informed Consent” to edit embryos: what consent?
Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More
Genetopia – The compelling stories and tensions behind genetic testing
What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More
Developing a genomics workforce for the future
The Topol Review, led by cardiologist, geneticist, and digital medicine researcher Dr Eric Topol and facilitated by Health Education England, … More
Human Embryo Editing: edging ever closer
“As scientific knowledge advances and societal views evolve, the clinical use of germline editing should be revisited on a regular … More
Legal duty to share genetic information goes to trial
By Vicky Chico and Anna Middleton Following on from our previous blog on the legal duty to share genetic information, … More
Your Genome, Your Research Agenda
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More