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Tag: Genome Research

Future of Genomic Research at Risk Without Greater Public Trust in How Genetic Data is Shared, Survey Finds.

The largest ever survey on global public attitudes towards genomic research and data sharing suggests that work is needed to … More

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Data, Genome Research, Genomethics
Second International Summit on Human Genome Editing - Anna Middleton, Visitor Pass

Human Embryo Editing: edging ever closer

“As scientific knowledge advances and societal views evolve, the clinical use of germline editing should be revisited on a regular … More

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Anna Middleton, Embryo Editing, Ethics posts, Genome Research, Genomethics, Genomics, Society and Ethics Research
Articulating the contract between science and people: DNA data sharing

Articulating the contract between science and people: DNA data sharing

A new deal on data: are you with us? For most of us it is hard to unpick the various … More

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Anna Middleton, Consent, Data, Data - Big, DNA, Genome Research, Genomethics, Legal, Research, Research participant, Scientists, Society and Ethics Research
“If you know it, I’d like to know it too” – involving participants in genomic research

“If you know it, I’d like to know it too” – involving participants in genomics research

This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More

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Genome Research, Genome Sequencing, Genomethics, Genomic Research, Genomics, Mental Health, Research, Research participant, Survey
Lancet publishes Genomethics research - screenshot

Lancet publishes Genomethics research

In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More

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Genome Research, Genomethics, Genomic Research, Healthcare, Lancet, Questionnaire, Research, Research participant, Scientists, Society and Ethics Research, Survey
Jennifer Cham - Screenshot image

Survey talk – guest blog by Dr Jenny Cham

This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More

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Anna Middleton, Attitudes, Genome Research, Genomethics, Genomic Research, Genomics, Incidental findings, Questionnaire, Research, Society and Ethics Research, Survey, WGS

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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