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Tag: Consent

“Informed Consent” to edit embryos: what consent?

Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More

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Consent, CRISPR, Embryo Editing, Ethics posts, Genomethics, Genomic Research, Research, Research participant, Society and Ethics Research
Articulating the contract between science and people: DNA data sharing

Articulating the contract between science and people: DNA data sharing

A new deal on data: are you with us? For most of us it is hard to unpick the various … More

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Anna Middleton, Consent, Data, Data - Big, DNA, Genome Research, Genomethics, Legal, Research, Research participant, Scientists, Society and Ethics Research
DNA and Big Data

DNA and Big Data: be part of the conversation

The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More

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Anna Middleton, Attitudes, Consent, Data, Data - Big, DNA, Genomic Research, Healthcare, Legal, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
Prince William

Attention The Times: Prince William’s DNA is not a toy

An ancestor of Prince William’s from the 19th century was half Indian, according to The Times. This claim is based … More

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Consent, DNA
Sexual abuse: Getting the Message Across

Sexual abuse: Getting the Message Across

A 35 year old woman, let’s call her Sarah, is estranged from her parents. After 20 years of no contact, … More

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Consent, Doctor, Family Communication about Genetics, Genetic Testing, Healthcare, Mental Health, NHS, Treatment
Channel 4 news article on Genomethics survey

Channel 4 news article on Genomethics survey

Channel 4 news ran a newspiece in 2014 on our research all about what people want to know from their … More

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Attitudes, Consent, Genomethics, Incidental findings, Questionnaire, Research participant, WGS
Should patients know that they are research subjects?

Should patients know that they are research subjects?

Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More

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Consent, Patient, Research

Recent Posts

  • I:DNA – an immersive exploration into the view of people living with genetic conditions
  • So Much More Than Just a Test, the introductory film to the Voices of Genetic Counsellors short documentary series, is an official selection for the 2020 Imagine Science Film Festival
  • Wellcome Genome Campus Society and Ethics Research Lead on a UK Citizens Assembly.
  • Future of Genomic Research at Risk Without Greater Public Trust in How Genetic Data is Shared, Survey Finds.
  • Genetic Counsellors: Walking on the genetics journey

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Anna Middleton PhD


Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


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