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Tag: Survey

Global perspectives on health, research and trustworthiness

Trust is critical to virtually everything we do in life, wherever in the world we are. We trust that when … More

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Data, data sharing, DNA, ethics, Genomics, health data, Research, Society and Ethics Research, Survey

Genomics and big data — who do we trust?

Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More

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Attitudes, Data, Data - Big, DNA, Ethics posts, Genetic Counselling, Genetic Testing, Genomics, Healthcare, Research, Research participant, Survey

New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK

A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More

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Anna Middleton, Data, DNA, Genomics, Legal, NHS, Research, Research participant, Society and Ethics Research, Survey
Developing a genomics workforce for the future

Developing a genomics workforce for the future

The Topol Review, led by cardiologist, geneticist, and digital medicine researcher Dr Eric Topol and facilitated by Health Education England, … More

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Ethics posts, Genetic Counselling, Genomethics, Genomics, NHS, Questionnaire, Research, Research participant, Society and Ethics Research, Survey, Treatment
DNA and Big Data

DNA and Big Data: be part of the conversation

The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More

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Anna Middleton, Attitudes, Consent, Data, Data - Big, DNA, Genomic Research, Healthcare, Legal, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
The making of Genetube Project

The ‘Making Of’ GeneTube Project

Here is a little film that gives an overview of what we did in the Socialising the Genome project. Julian … More

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Anna Middleton, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
Your DNA Your Views Image/Logo

Largest survey of public attitudes shows perceived value of genomic data

We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More

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Attitudes, Data, Genomethics, Genomics, Incidental findings, Questionnaire, Research participant, Survey, WGS
“If you know it, I’d like to know it too” – involving participants in genomic research

“If you know it, I’d like to know it too” – involving participants in genomics research

This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More

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Genome Research, Genome Sequencing, Genomethics, Genomic Research, Genomics, Mental Health, Research, Research participant, Survey
Lancet publishes Genomethics research - screenshot

Lancet publishes Genomethics research

In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More

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Genome Research, Genomethics, Genomic Research, Healthcare, Lancet, Questionnaire, Research, Research participant, Scientists, Society and Ethics Research, Survey
Jennifer Cham - Screenshot image

Survey talk – guest blog by Dr Jenny Cham

This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More

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Anna Middleton, Attitudes, Genome Research, Genomethics, Genomic Research, Genomics, Incidental findings, Questionnaire, Research, Society and Ethics Research, Survey, WGS
Dame Sally Davies, Chief Medical Officer comments on Genomethics

Dame Sally Davies, Chief Medical Officer comments on Genomethics

To date, 3000 people have completed our online survey exploring various ethical implications arising from the application of genome technology.  … More

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100k genomes project, Genomics, NHS, Survey
New innovative survey - article image

New, innovative survey

Your doctor knows you at increased risk of getting cancer.  You’d want to know, right?  Or maybe not.  Researchers in … More

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Genomethics, Questionnaire, Survey

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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