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Tag: Data

Global perspectives on health, research and trustworthiness

Trust is critical to virtually everything we do in life, wherever in the world we are. We trust that when … More

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Data, data sharing, DNA, ethics, Genomics, health data, Research, Society and Ethics Research, Survey

An Important Era for Socialising the Genome

Genomics, Public Trust and Engagement “Genomics” – a scientific term previously considered most relevant to scientific research, is now a … More

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Data, data ethics, data sharing, DNA, ethics, Genomics, public engagement, socialising the genome, Society and Ethics Research

Future of Genomic Research at Risk Without Greater Public Trust in How Genetic Data is Shared, Survey Finds.

The largest ever survey on global public attitudes towards genomic research and data sharing suggests that work is needed to … More

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Data, Genome Research, Genomethics

Genomics and big data — who do we trust?

Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More

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Attitudes, Data, Data - Big, DNA, Ethics posts, Genetic Counselling, Genetic Testing, Genomics, Healthcare, Research, Research participant, Survey

New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK

A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More

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Anna Middleton, Data, DNA, Genomics, Legal, NHS, Research, Research participant, Society and Ethics Research, Survey
Articulating the contract between science and people: DNA data sharing

Articulating the contract between science and people: DNA data sharing

A new deal on data: are you with us? For most of us it is hard to unpick the various … More

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Anna Middleton, Consent, Data, Data - Big, DNA, Genome Research, Genomethics, Legal, Research, Research participant, Scientists, Society and Ethics Research
Legal duty to share genetic information goes to trial

Legal duty to share genetic information goes to trial

By Vicky Chico and Anna Middleton Following on from our previous blog on the legal duty to share genetic information, … More

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Data, Doctor, Duty of Care, Ethics posts, Family Communication about Genetics, Genetic Testing, Genomethics, Guest Authors, Legal, Society and Ethics Research
Legal duty to share genetic information? ABC v St George’s Healthcare NHS Trust

Legal duty to share genetic information? ABC v St George’s Healthcare NHS Trust

Guest blog by Dr Vicky Chico, Legal Consultant, Society and Ethics Research Group, Wellcome Genome Campus, Cambridge Yesterday myself and … More

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Data, Doctor, Duty of Care, Family Communication about Genetics, Genetic Testing, Guest Authors, Healthcare, Legal
DNA and Big Data

DNA and Big Data: be part of the conversation

The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More

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Anna Middleton, Attitudes, Consent, Data, Data - Big, DNA, Genomic Research, Healthcare, Legal, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
Cinema Magic for Engagement with Genomics - Spiderman

Cinema Magic for Engagement with Genomics

This guest blogpost comes from Jon Roberts, genetic counsellor and PhD student at KCL and Wellcome Genome Campus. Jon is … More

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CRISPR, Data, Embryo Editing, Family Communication about Genetics, Genetic Testing, Guest Authors, Scientists
Genomethics Blog - Illustration (Original)

Socialising the Genome – how do we start a conversation about genomics?

How easy is it to strike up a conversation about genomics? Geno-what? Does the average person on the street know … More

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Data, Genetic Testing, Genomics, Healthcare, NHS
Your DNA Your Views Image/Logo

Largest survey of public attitudes shows perceived value of genomic data

We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More

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Attitudes, Data, Genomethics, Genomics, Incidental findings, Questionnaire, Research participant, Survey, WGS

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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