The largest ever survey on global public attitudes towards genomic research and data sharing suggests that work is needed to … More
Tag: Genomethics
Genetic Counsellors: A unique skill set
Genetic Counsellors are pivotal to the interpretation of complex clinical concepts; possessing specialist skills and expertise to communicate genetic information … More
Addressing inclusion in genetic counselling
For patients receiving genetic counselling there is often a mixture of emotions and anxieties involved. The very purpose of this service is to help people make sense of who they are, what inherited risks they might face, or even come to terms with a difficult diagnosis.
“Informed Consent” to edit embryos: what consent?
Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More
Genetopia – The compelling stories and tensions behind genetic testing
What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More
Genetic Disability, Experience and the Sorting Society
Are we heading towards a future where genetic conditions are ‘screened-out’? Who gets to decide which conditions are screened for? … More
Developing a genomics workforce for the future
The Topol Review, led by cardiologist, geneticist, and digital medicine researcher Dr Eric Topol and facilitated by Health Education England, … More
Human Embryo Editing: edging ever closer
“As scientific knowledge advances and societal views evolve, the clinical use of germline editing should be revisited on a regular … More
Articulating the contract between science and people: DNA data sharing
A new deal on data: are you with us? For most of us it is hard to unpick the various … More
Legal duty to share genetic information goes to trial
By Vicky Chico and Anna Middleton Following on from our previous blog on the legal duty to share genetic information, … More
Your Genome, Your Research Agenda
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More
Largest survey of public attitudes shows perceived value of genomic data
We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More
“If you know it, I’d like to know it too” – involving participants in genomics research
This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More
Lancet publishes Genomethics research
In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More
Survey talk – guest blog by Dr Jenny Cham
This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More
Channel 4 news article on Genomethics survey
Channel 4 news ran a newspiece in 2014 on our research all about what people want to know from their … More
New, innovative survey
Your doctor knows you at increased risk of getting cancer. You’d want to know, right? Or maybe not. Researchers in … More