Turning patient stories into hope and resilience One of the main reasons people seek a genetic test is to establish … More
Tag: Genomic Research
“Informed Consent” to edit embryos: what consent?
Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More
Genetopia – The compelling stories and tensions behind genetic testing
What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More
DNA and Big Data: be part of the conversation
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More
“If you know it, I’d like to know it too” – involving participants in genomics research
This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More
Lancet publishes Genomethics research
In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More
Survey talk – guest blog by Dr Jenny Cham
This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More