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Tag: Genomic Research

Genetic Counsellors: Enabling Patients to Fostering Resilience

Turning patient stories into hope and resilience One of the main reasons people seek a genetic test is to establish … More

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Family Communication about Genetics, Genetic Counselling, genetic counsellors, Genetic Testing, genetics, Genomic Research, Genomics, Patient

“Informed Consent” to edit embryos: what consent?

Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More

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Consent, CRISPR, Embryo Editing, Ethics posts, Genomethics, Genomic Research, Research, Research participant, Society and Ethics Research

Genetopia – The compelling stories and tensions behind genetic testing

What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More

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DNA, Ethics posts, Genetic Testing, Genomethics, Genomic Research, Research, Society and Ethics Research
DNA and Big Data

DNA and Big Data: be part of the conversation

The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More

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Anna Middleton, Attitudes, Consent, Data, Data - Big, DNA, Genomic Research, Healthcare, Legal, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
“If you know it, I’d like to know it too” – involving participants in genomic research

“If you know it, I’d like to know it too” – involving participants in genomics research

This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More

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Genome Research, Genome Sequencing, Genomethics, Genomic Research, Genomics, Mental Health, Research, Research participant, Survey
Lancet publishes Genomethics research - screenshot

Lancet publishes Genomethics research

In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More

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Genome Research, Genomethics, Genomic Research, Healthcare, Lancet, Questionnaire, Research, Research participant, Scientists, Society and Ethics Research, Survey
Jennifer Cham - Screenshot image

Survey talk – guest blog by Dr Jenny Cham

This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More

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Anna Middleton, Attitudes, Genome Research, Genomethics, Genomic Research, Genomics, Incidental findings, Questionnaire, Research, Society and Ethics Research, Survey, WGS

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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