Trust is critical to virtually everything we do in life, wherever in the world we are. We trust that when … More
Tag: Society and Ethics Research
An Important Era for Socialising the Genome
Genomics, Public Trust and Engagement “Genomics” – a scientific term previously considered most relevant to scientific research, is now a … More
Music of Life Short-film Selected for Raw Science Film Festival 2020
The Music of Life: What is a Gene? short-film selected to appear in the 2020 Raw Science Film Festival (Los Angeles, California).
The duty of care: a genetic balancing act?
Genetic testing is becoming a standard part of UK healthcare, with plans to expand its use. But who does this information belong to, and who decides who it is shared with?
Addressing inclusion in genetic counselling
For patients receiving genetic counselling there is often a mixture of emotions and anxieties involved. The very purpose of this service is to help people make sense of who they are, what inherited risks they might face, or even come to terms with a difficult diagnosis.
“Informed Consent” to edit embryos: what consent?
Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More
New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK
A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More
Genetopia – The compelling stories and tensions behind genetic testing
What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More
Genetic Disability, Experience and the Sorting Society
Are we heading towards a future where genetic conditions are ‘screened-out’? Who gets to decide which conditions are screened for? … More
Developing a genomics workforce for the future
The Topol Review, led by cardiologist, geneticist, and digital medicine researcher Dr Eric Topol and facilitated by Health Education England, … More
Human Embryo Editing: edging ever closer
“As scientific knowledge advances and societal views evolve, the clinical use of germline editing should be revisited on a regular … More
Articulating the contract between science and people: DNA data sharing
A new deal on data: are you with us? For most of us it is hard to unpick the various … More
Legal duty to share genetic information goes to trial
By Vicky Chico and Anna Middleton Following on from our previous blog on the legal duty to share genetic information, … More
Your Genome, Your Research Agenda
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More
DNA and Big Data: be part of the conversation
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More
The ‘Making Of’ GeneTube Project
Here is a little film that gives an overview of what we did in the Socialising the Genome project. Julian … More
Lancet publishes Genomethics research
In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More
Survey talk – guest blog by Dr Jenny Cham
This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More