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Tag: Healthcare

Genomics and big data — who do we trust?

Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More

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Attitudes, Data, Data - Big, DNA, Ethics posts, Genetic Counselling, Genetic Testing, Genomics, Healthcare, Research, Research participant, Survey
Legal duty to share genetic information? ABC v St George’s Healthcare NHS Trust

Legal duty to share genetic information? ABC v St George’s Healthcare NHS Trust

Guest blog by Dr Vicky Chico, Legal Consultant, Society and Ethics Research Group, Wellcome Genome Campus, Cambridge Yesterday myself and … More

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Data, Doctor, Duty of Care, Family Communication about Genetics, Genetic Testing, Guest Authors, Healthcare, Legal
DNA and Big Data

DNA and Big Data: be part of the conversation

The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More

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Anna Middleton, Attitudes, Consent, Data, Data - Big, DNA, Genomic Research, Healthcare, Legal, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
Genomethics Blog - Illustration (Original)

Socialising the Genome – how do we start a conversation about genomics?

How easy is it to strike up a conversation about genomics? Geno-what? Does the average person on the street know … More

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Data, Genetic Testing, Genomics, Healthcare, NHS
Lancet publishes Genomethics research - screenshot

Lancet publishes Genomethics research

In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More

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Genome Research, Genomethics, Genomic Research, Healthcare, Lancet, Questionnaire, Research, Research participant, Scientists, Society and Ethics Research, Survey
Genetic counsellors and genomic counselling - feature image

Genetic counsellors and genomic counselling

The genomic era is upon us. From the Government’s pledge to sequence 100,000 genomes to the launch of 23andMe, a … More

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100k genomes project, DNA, Genetic Counselling, Genetic Testing, Genome Sequencing, Genomics, Healthcare, Treatment
Sexual abuse: Getting the Message Across

Sexual abuse: Getting the Message Across

A 35 year old woman, let’s call her Sarah, is estranged from her parents. After 20 years of no contact, … More

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Consent, Doctor, Family Communication about Genetics, Genetic Testing, Healthcare, Mental Health, NHS, Treatment

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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