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Category: Genetics

The Evolution of the Genetic Counselling Profession

Tracking the development of the Genetic Counsellor role In 2020 the Wellcome Connecting Science Engagement and Society team explored the … More

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Genetic Counselling, Genetic Testing, Genomics

An Important Era for Socialising the Genome

Genomics, Public Trust and Engagement “Genomics” – a scientific term previously considered most relevant to scientific research, is now a … More

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Data, data ethics, data sharing, DNA, ethics, Genomics, public engagement, socialising the genome, Society and Ethics Research

I:DNA – an immersive exploration into the view of people living with genetic conditions

This multi-sensory art installation moves online In 2019, the Imagining Futures research by Prof Felicity Boardman, a professor in medicine … More

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Genetic Counsellors: An Important Part of Multidisciplinary Clinical Healthcare Teams

Genomethics discusses how genetic counsellors can help their colleagues learn about genetics

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Genetic Counselling, Genetic Testing, Genomics, NHS

New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK

A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More

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Anna Middleton, Data, DNA, Genomics, Legal, NHS, Research, Research participant, Society and Ethics Research, Survey

Genetopia – The compelling stories and tensions behind genetic testing

What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More

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DNA, Ethics posts, Genetic Testing, Genomethics, Genomic Research, Research, Society and Ethics Research
Second International Summit on Human Genome Editing - Anna Middleton, Visitor Pass

Human Embryo Editing: edging ever closer

“As scientific knowledge advances and societal views evolve, the clinical use of germline editing should be revisited on a regular … More

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Anna Middleton, Embryo Editing, Ethics posts, Genome Research, Genomethics, Genomics, Society and Ethics Research
Legal duty to share genetic information goes to trial

Legal duty to share genetic information goes to trial

By Vicky Chico and Anna Middleton Following on from our previous blog on the legal duty to share genetic information, … More

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Data, Doctor, Duty of Care, Ethics posts, Family Communication about Genetics, Genetic Testing, Genomethics, Guest Authors, Legal, Society and Ethics Research
Legal duty to share genetic information? ABC v St George’s Healthcare NHS Trust

Legal duty to share genetic information? ABC v St George’s Healthcare NHS Trust

Guest blog by Dr Vicky Chico, Legal Consultant, Society and Ethics Research Group, Wellcome Genome Campus, Cambridge Yesterday myself and … More

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Data, Doctor, Duty of Care, Family Communication about Genetics, Genetic Testing, Guest Authors, Healthcare, Legal
Your Genome, Your Research Agenda

Your Genome, Your Research Agenda

On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More

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100k genomes project, Anna Middleton, Ethics posts, Genomethics, Genomics, Mental Health, Patient, Research, Research participant, Scientists, Society and Ethics Research
Talking about genetics with Children? Use Harry Potter

Talking about genetics with children? Use Harry Potter

This guest blog comes from Jon Roberts again; doctoral student from Kings College London and Wellcome Genome Campus. See Jon’s … More

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DNA, Family Communication about Genetics, Genetic Counselling, genetic counsellors, Guest Authors
Cinema Magic for Engagement with Genomics - Spiderman

Cinema Magic for Engagement with Genomics

This guest blogpost comes from Jon Roberts, genetic counsellor and PhD student at KCL and Wellcome Genome Campus. Jon is … More

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CRISPR, Data, Embryo Editing, Family Communication about Genetics, Genetic Testing, Guest Authors, Scientists
Your DNA Your Views Image/Logo

Largest survey of public attitudes shows perceived value of genomic data

We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More

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Attitudes, Data, Genomethics, Genomics, Incidental findings, Questionnaire, Research participant, Survey, WGS
Lancet publishes Genomethics research - screenshot

Lancet publishes Genomethics research

In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More

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Genome Research, Genomethics, Genomic Research, Healthcare, Lancet, Questionnaire, Research, Research participant, Scientists, Society and Ethics Research, Survey
Patient and Doctor image

Opportunistic genomic screening: the voices that need to be heard

Genetic screening: the voices that need to be heard.

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Jennifer Cham - Screenshot image

Survey talk – guest blog by Dr Jenny Cham

This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More

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Anna Middleton, Attitudes, Genome Research, Genomethics, Genomic Research, Genomics, Incidental findings, Questionnaire, Research, Society and Ethics Research, Survey, WGS
Prince William

Attention The Times: Prince William’s DNA is not a toy

An ancestor of Prince William’s from the 19th century was half Indian, according to The Times. This claim is based … More

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Consent, DNA
Angelina Jolie - Portrait

Angelina Jolie tested for one gene, what about the other 20,000?

The world reacted with shock as Angelina Jolie, Hollywood actress, UN Ambassador and world renowned beauty announced in the New … More

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DNA, Genetic Testing, Genome Sequencing
Sexual abuse: Getting the Message Across

Sexual abuse: Getting the Message Across

A 35 year old woman, let’s call her Sarah, is estranged from her parents. After 20 years of no contact, … More

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Consent, Doctor, Family Communication about Genetics, Genetic Testing, Healthcare, Mental Health, NHS, Treatment
Channel 4 news article on Genomethics survey

Channel 4 news article on Genomethics survey

Channel 4 news ran a newspiece in 2014 on our research all about what people want to know from their … More

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Attitudes, Consent, Genomethics, Incidental findings, Questionnaire, Research participant, WGS
Should patients know that they are research subjects?

Should patients know that they are research subjects?

Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More

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Consent, Patient, Research
Mental health links to genetics - article image

Mental health links to genetics

A paper published in the Lancet on 28th Feb showed that there were shared genetic causes behind autism spectrum disorder, … More

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Genomics, Lancet, Mental Health, Treatment

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GenomEthics – Archive

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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