A new deal on data: are you with us? For most of us it is hard to unpick the various declarations, assurances and guarantees made regarding the sanctity of our data. Even the General Data Protection Regulation still feels quite far removed from the everyday lives of ordinary people and is seemingly absent of any … Continue reading
Guest blog by Dr Vicky Chico, Legal Consultant, Society and Ethics Research Group, Wellcome Genome Campus, Cambridge Yesterday myself and a colleague from the Society and Ethics Research Group sat in the Court of Appeal for ABC v St George’s Healthcare NHS Trust. Almost two years ago Judge Nicol (‘Nicol J’), in the High Court, … Continue reading
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the research agenda should be for social scientists researching genomics. Here, patients and their representatives (some from the 100k Genomes Project, others from families with genetic conditions) met with 5 social scientists from a Genomics England … Continue reading
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore global public attitudes and beliefs around the sharing of genetic information. This has become increasingly urgent as we enter a new era of genomic medicine in which unique ethical and moral questions arise, at both … Continue reading
How easy is it to strike up a conversation about genomics? Geno-what? Does the average person on the street know enough about the issues to even care? We’ve just launched a project called Socialising the Genome to explore how to turn genomics from an anti-social concept to a more social one. Animations were created from … Continue reading
