The largest ever survey on global public attitudes towards genomic research and data sharing suggests that work is needed to … More
Category: Survey
New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK
A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More
Genetopia – The compelling stories and tensions behind genetic testing
What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More
DNA and Big Data: be part of the conversation
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More
Talking about genetics with children? Use Harry Potter
This guest blog comes from Jon Roberts again; doctoral student from Kings College London and Wellcome Genome Campus. See Jon’s … More
Cinema Magic for Engagement with Genomics
This guest blogpost comes from Jon Roberts, genetic counsellor and PhD student at KCL and Wellcome Genome Campus. Jon is … More
Largest survey of public attitudes shows perceived value of genomic data
We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More
Lancet publishes Genomethics research
In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More
Survey talk – guest blog by Dr Jenny Cham
This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More
Dame Sally Davies, Chief Medical Officer comments on Genomethics
To date, 3000 people have completed our online survey exploring various ethical implications arising from the application of genome technology. … More
Channel 4 news article on Genomethics survey
Channel 4 news ran a newspiece in 2014 on our research all about what people want to know from their … More
Should patients know that they are research subjects?
Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More
New, innovative survey
Your doctor knows you at increased risk of getting cancer. You’d want to know, right? Or maybe not. Researchers in … More