Tracking the development of the Genetic Counsellor role In 2020 the Wellcome Connecting Science Engagement and Society team explored the … More
Tag: Genomics
Global perspectives on health, research and trustworthiness
Trust is critical to virtually everything we do in life, wherever in the world we are. We trust that when … More
An Important Era for Socialising the Genome
Genomics, Public Trust and Engagement “Genomics” – a scientific term previously considered most relevant to scientific research, is now a … More
So Much More Than Just a Test, the introductory film to the Voices of Genetic Counsellors short documentary series, is an official selection for the 2020 Imagine Science Film Festival
Placing the role of Genetic Counsellors in the Spotlight We are proud to share that So Much More Than Just … More
Wellcome Genome Campus Society and Ethics Research Lead on a UK Citizens Assembly.
Wellcome Genome Campus Society and Ethics lead of a UK citizens assembly for gene-editing
Genetic Counsellors: Enabling Patients to Fostering Resilience
Turning patient stories into hope and resilience One of the main reasons people seek a genetic test is to establish … More
Genetic Counsellors: Helping Patients Cope with Bad Results
The art of caring in clinical practice For genetic counsellors it’s not simply enough to impart scientific knowledge, or to … More
Music of Life Short-film Selected for Raw Science Film Festival 2020
The Music of Life: What is a Gene? short-film selected to appear in the 2020 Raw Science Film Festival (Los Angeles, California).
Genetic Counsellors – Communicating Complex Messages
Receiving a confirmed diagnosis of a genetic condition can have a ripple effect, potentially affecting multiple generations of a single family.
Genetic Counsellors: An Important Part of Multidisciplinary Clinical Healthcare Teams
Genomethics discusses how genetic counsellors can help their colleagues learn about genetics
Addressing inclusion in genetic counselling
For patients receiving genetic counselling there is often a mixture of emotions and anxieties involved. The very purpose of this service is to help people make sense of who they are, what inherited risks they might face, or even come to terms with a difficult diagnosis.
Genomics and big data — who do we trust?
Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More
New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK
A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More
Genetic Disability, Experience and the Sorting Society
Are we heading towards a future where genetic conditions are ‘screened-out’? Who gets to decide which conditions are screened for? … More
Developing a genomics workforce for the future
The Topol Review, led by cardiologist, geneticist, and digital medicine researcher Dr Eric Topol and facilitated by Health Education England, … More
Human Embryo Editing: edging ever closer
“As scientific knowledge advances and societal views evolve, the clinical use of germline editing should be revisited on a regular … More
Your Genome, Your Research Agenda
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More
Socialising the Genome – how do we start a conversation about genomics?
How easy is it to strike up a conversation about genomics? Geno-what? Does the average person on the street know … More
Largest survey of public attitudes shows perceived value of genomic data
We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More
“If you know it, I’d like to know it too” – involving participants in genomics research
This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More
Genetic counsellors and genomic counselling
The genomic era is upon us. From the Government’s pledge to sequence 100,000 genomes to the launch of 23andMe, a … More
Survey talk – guest blog by Dr Jenny Cham
This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More
Dame Sally Davies, Chief Medical Officer comments on Genomethics
To date, 3000 people have completed our online survey exploring various ethical implications arising from the application of genome technology. … More
Mental health links to genetics
A paper published in the Lancet on 28th Feb showed that there were shared genetic causes behind autism spectrum disorder, … More