A new deal on data: are you with us? For most of us it is hard to unpick the various declarations, assurances and guarantees made regarding the sanctity of our data. Even the General Data Protection Regulation still feels quite far removed from the everyday lives of ordinary people and is seemingly absent of any … Continue reading
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore global public attitudes and beliefs around the sharing of genetic information. This has become increasingly urgent as we enter a new era of genomic medicine in which unique ethical and moral questions arise, at both … Continue reading
We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press release the Wellcome Trust Sanger Institute put out about the work. Thank you so much to those of you who took the time to complete the survey and tell us what you feel researchers should … Continue reading
This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report The collection, linking and use of data in biomedical research and health care: ethical issues on Tuesday 3 February 2015 in London. I was asked to offer a response to their report, drawing on my … Continue reading
