Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More
Category: Big Data
Articulating the contract between science and people: DNA data sharing
A new deal on data: are you with us? For most of us it is hard to unpick the various … More
DNA and Big Data: be part of the conversation
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More
Largest survey of public attitudes shows perceived value of genomic data
We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More
“If you know it, I’d like to know it too” – involving participants in genomics research
This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More
Should patients know that they are research subjects?
Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More