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Category: Big Data

Global perspectives on health, research and trustworthiness

Trust is critical to virtually everything we do in life, wherever in the world we are. We trust that when … More

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Data, data sharing, DNA, ethics, Genomics, health data, Research, Society and Ethics Research, Survey

Genomics and big data — who do we trust?

Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More

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Attitudes, Data, Data - Big, DNA, Ethics posts, Genetic Counselling, Genetic Testing, Genomics, Healthcare, Research, Research participant, Survey
Articulating the contract between science and people: DNA data sharing

Articulating the contract between science and people: DNA data sharing

A new deal on data: are you with us? For most of us it is hard to unpick the various … More

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Anna Middleton, Consent, Data, Data - Big, DNA, Genome Research, Genomethics, Legal, Research, Research participant, Scientists, Society and Ethics Research
DNA and Big Data

DNA and Big Data: be part of the conversation

The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More

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Anna Middleton, Attitudes, Consent, Data, Data - Big, DNA, Genomic Research, Healthcare, Legal, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
Your DNA Your Views Image/Logo

Largest survey of public attitudes shows perceived value of genomic data

We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More

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Attitudes, Data, Genomethics, Genomics, Incidental findings, Questionnaire, Research participant, Survey, WGS
“If you know it, I’d like to know it too” – involving participants in genomic research

“If you know it, I’d like to know it too” – involving participants in genomics research

This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More

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Genome Research, Genome Sequencing, Genomethics, Genomic Research, Genomics, Mental Health, Research, Research participant, Survey
Should patients know that they are research subjects?

Should patients know that they are research subjects?

Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More

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Consent, Patient, Research

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  • The Character of science: can what we see on a reel be translated to real-life?
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GenomEthics – Archive

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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