Trust is critical to virtually everything we do in life, wherever in the world we are. We trust that when … More
Category: Consent
Future of Genomic Research at Risk Without Greater Public Trust in How Genetic Data is Shared, Survey Finds.
The largest ever survey on global public attitudes towards genomic research and data sharing suggests that work is needed to … More
Genomics and big data — who do we trust?
Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More
“Informed Consent” to edit embryos: what consent?
Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More
Genetic Disability, Experience and the Sorting Society
Are we heading towards a future where genetic conditions are ‘screened-out’? Who gets to decide which conditions are screened for? … More
Human Embryo Editing: edging ever closer
“As scientific knowledge advances and societal views evolve, the clinical use of germline editing should be revisited on a regular … More
“If you know it, I’d like to know it too” – involving participants in genomics research
This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More
Attention The Times: Prince William’s DNA is not a toy
An ancestor of Prince William’s from the 19th century was half Indian, according to The Times. This claim is based … More
Sexual abuse: Getting the Message Across
A 35 year old woman, let’s call her Sarah, is estranged from her parents. After 20 years of no contact, … More
Should patients know that they are research subjects?
Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More