Turning patient stories into hope and resilience One of the main reasons people seek a genetic test is to establish … More
Category: Ethics
Genomics and big data — who do we trust?
Genomic data is being produced in ever greater quantities, whether within our health services, in academic research projects, or by … More
Genetopia – The compelling stories and tensions behind genetic testing
What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More
Human Embryo Editing: edging ever closer
“As scientific knowledge advances and societal views evolve, the clinical use of germline editing should be revisited on a regular … More
Editing embryos – Could you? Would you? Should you? Views from Genetic Counsellors
Genetic counsellors sit on the front line of genomics – translating (literally) the science for people who are trying to … More
Legal duty to share genetic information goes to trial
By Vicky Chico and Anna Middleton Following on from our previous blog on the legal duty to share genetic information, … More
Legal duty to share genetic information? ABC v St George’s Healthcare NHS Trust
Guest blog by Dr Vicky Chico, Legal Consultant, Society and Ethics Research Group, Wellcome Genome Campus, Cambridge Yesterday myself and … More
Your Genome, Your Research Agenda
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More
“If you know it, I’d like to know it too” – involving participants in genomics research
This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More
Lancet publishes Genomethics research
In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More
Survey talk – guest blog by Dr Jenny Cham
This past Friday on the Genome Campus, Dr Anna Middleton of the Wellcome Trust Sanger Institute gave an interesting seminar … More
Angelina Jolie tested for one gene, what about the other 20,000?
The world reacted with shock as Angelina Jolie, Hollywood actress, UN Ambassador and world renowned beauty announced in the New … More
Dame Sally Davies, Chief Medical Officer comments on Genomethics
To date, 3000 people have completed our online survey exploring various ethical implications arising from the application of genome technology. … More
‘No choice for you’ according to the ACMG
The American College of Medical Genetics (ACMG) has recently published recommendations for reporting incidental findings (IFs) in clinical exome and … More
DNA Sequencing – Can You Handle the Truth?
Having your genes studied is cheap (about $99) and easy (just spit here). And according to 23andMe (one of the … More
Channel 4 news article on Genomethics survey
Channel 4 news ran a newspiece in 2014 on our research all about what people want to know from their … More
Should patients know that they are research subjects?
Accidental Research Subjects I read an article In the San Francisco Chronicle this week that raised a prickly question, namely … More