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Category: Public engagement

An Important Era for Socialising the Genome

Genomics, Public Trust and Engagement “Genomics” – a scientific term previously considered most relevant to scientific research, is now a … More

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Data, data ethics, data sharing, DNA, ethics, Genomics, public engagement, socialising the genome, Society and Ethics Research

New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK

A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More

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Anna Middleton, Data, DNA, Genomics, Legal, NHS, Research, Research participant, Society and Ethics Research, Survey
Articulating the contract between science and people: DNA data sharing

Articulating the contract between science and people: DNA data sharing

A new deal on data: are you with us? For most of us it is hard to unpick the various … More

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Anna Middleton, Consent, Data, Data - Big, DNA, Genome Research, Genomethics, Legal, Research, Research participant, Scientists, Society and Ethics Research
editing-embryos-could-you-would-you-should-you

Editing embryos – Could you? Would you? Should you? Views from Genetic Counsellors

Genetic counsellors sit on the front line of genomics – translating (literally) the science for people who are trying to … More

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Embryo Editing, Genetic Counselling, Genetic Testing, Legal, Research
Legal duty to share genetic information goes to trial

Legal duty to share genetic information goes to trial

By Vicky Chico and Anna Middleton Following on from our previous blog on the legal duty to share genetic information, … More

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Data, Doctor, Duty of Care, Ethics posts, Family Communication about Genetics, Genetic Testing, Genomethics, Guest Authors, Legal, Society and Ethics Research
Your Genome, Your Research Agenda

Your Genome, Your Research Agenda

On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More

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100k genomes project, Anna Middleton, Ethics posts, Genomethics, Genomics, Mental Health, Patient, Research, Research participant, Scientists, Society and Ethics Research
DNA and Big Data

DNA and Big Data: be part of the conversation

The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More

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Anna Middleton, Attitudes, Consent, Data, Data - Big, DNA, Genomic Research, Healthcare, Legal, Questionnaire, Research, Research participant, Society and Ethics Research, Survey
Talking about genetics with Children? Use Harry Potter

Talking about genetics with children? Use Harry Potter

This guest blog comes from Jon Roberts again; doctoral student from Kings College London and Wellcome Genome Campus. See Jon’s … More

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DNA, Family Communication about Genetics, Genetic Counselling, genetic counsellors, Guest Authors
Cinema Magic for Engagement with Genomics - Spiderman

Cinema Magic for Engagement with Genomics

This guest blogpost comes from Jon Roberts, genetic counsellor and PhD student at KCL and Wellcome Genome Campus. Jon is … More

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CRISPR, Data, Embryo Editing, Family Communication about Genetics, Genetic Testing, Guest Authors, Scientists
Your DNA Your Views Image/Logo

Largest survey of public attitudes shows perceived value of genomic data

We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More

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Attitudes, Data, Genomethics, Genomics, Incidental findings, Questionnaire, Research participant, Survey, WGS
“If you know it, I’d like to know it too” – involving participants in genomic research

“If you know it, I’d like to know it too” – involving participants in genomics research

This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More

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Genome Research, Genome Sequencing, Genomethics, Genomic Research, Genomics, Mental Health, Research, Research participant, Survey
Lancet publishes Genomethics research - screenshot

Lancet publishes Genomethics research

In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More

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Genome Research, Genomethics, Genomic Research, Healthcare, Lancet, Questionnaire, Research, Research participant, Scientists, Society and Ethics Research, Survey
I'm a Scientist Get Me Out of Here - Logo

Leading questions

“Why do we itch – what’s occurring in our bodies?” and “Do animals have belly buttons?” These are just a … More

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Scientists
Channel 4 news article on Genomethics survey

Channel 4 news article on Genomethics survey

Channel 4 news ran a newspiece in 2014 on our research all about what people want to know from their … More

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Attitudes, Consent, Genomethics, Incidental findings, Questionnaire, Research participant, WGS

Recent Posts

  • The Character of science: can what we see on a reel be translated to real-life?
  • The Evolution of the Genetic Counselling Profession
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GenomEthics – Archive

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Anna Middleton PhD

Head of Society and Ethics Research, Connecting Science at Wellcome Genome Campus, Cambridge, UK. Chair of Association of Genetic Nurses and Counsellors. Continually asking 'how are people making sense of genomics?'


 

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