Genomics, Public Trust and Engagement “Genomics” – a scientific term previously considered most relevant to scientific research, is now a … More
Category: Public engagement
New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK
A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More
Articulating the contract between science and people: DNA data sharing
A new deal on data: are you with us? For most of us it is hard to unpick the various … More
Editing embryos – Could you? Would you? Should you? Views from Genetic Counsellors
Genetic counsellors sit on the front line of genomics – translating (literally) the science for people who are trying to … More
Legal duty to share genetic information goes to trial
By Vicky Chico and Anna Middleton Following on from our previous blog on the legal duty to share genetic information, … More
Your Genome, Your Research Agenda
On 30th September 2016 we were part of a very exciting event to determine, from a patient perspective, what the … More
DNA and Big Data: be part of the conversation
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More
Talking about genetics with children? Use Harry Potter
This guest blog comes from Jon Roberts again; doctoral student from Kings College London and Wellcome Genome Campus. See Jon’s … More
Cinema Magic for Engagement with Genomics
This guest blogpost comes from Jon Roberts, genetic counsellor and PhD student at KCL and Wellcome Genome Campus. Jon is … More
Largest survey of public attitudes shows perceived value of genomic data
We made it! Finally, the main set of results from our survey (opposite) have been published. Below is the press … More
“If you know it, I’d like to know it too” – involving participants in genomics research
This blog post is based on the talk I gave at the launch of the Nuffield Council of Bioethic’s report … More
Lancet publishes Genomethics research
In 2010, when the Deciphering Developmental Disorders project began screening patient genomes, we began talking to scientists, clinicians and patient … More
Leading questions
“Why do we itch – what’s occurring in our bodies?” and “Do animals have belly buttons?” These are just a … More
Channel 4 news article on Genomethics survey
Channel 4 news ran a newspiece in 2014 on our research all about what people want to know from their … More