Genomics, Public Trust and Engagement “Genomics” – a scientific term previously considered most relevant to scientific research, is now a … More
This multi-sensory art installation moves online In 2019, the Imagining Futures research by Prof Felicity Boardman, a professor in medicine … More
Placing the role of Genetic Counsellors in the Spotlight We are proud to share that So Much More Than Just … More
Wellcome Genome Campus Society and Ethics lead of a UK citizens assembly for gene-editing
The largest ever survey on global public attitudes towards genomic research and data sharing suggests that work is needed to … More
Over the past three months the ‘Voice of Genetic Counsellors’ video series has enabled us to step into the shoes … More
Turning patient stories into hope and resilience One of the main reasons people seek a genetic test is to establish … More
The art of caring in clinical practice For genetic counsellors it’s not simply enough to impart scientific knowledge, or to … More
The Music of Life: What is a Gene? short-film selected to appear in the 2020 Raw Science Film Festival (Los Angeles, California).
Genomics. Sequencing. Tracking. These are the buzzwords within COVID-19 science at the moment – describing how we map the DNA construction of the virus, how it’s mutating and where different strains are appearing.
Receiving a confirmed diagnosis of a genetic condition can have a ripple effect, potentially affecting multiple generations of a single family.
Genomethics discusses how genetic counsellors can help their colleagues learn about genetics
Genetic Counsellors are pivotal to the interpretation of complex clinical concepts; possessing specialist skills and expertise to communicate genetic information … More
Genetic testing is becoming a standard part of UK healthcare, with plans to expand its use. But who does this information belong to, and who decides who it is shared with?
The vital role of the Genetic Counsellor in their own words – Voices of Genetic Counsellors Video Series.
A collaborative project between Wellcome Genome Campus Society and Ethics Research and the Association of Genetic Nurses and Counsellors.
What it is like to live with a rare disease? 99% of genetic conditions are classed as rare, meaning they affect fewer than 1 in 2,000 people. Currently, there are over 6,000 known rare diseases, and thanks to advances in genome sequencing new ones are being identified and described on a regular basis.
Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More
A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More
What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More
Are we heading towards a future where genetic conditions are ‘screened-out’? Who gets to decide which conditions are screened for? … More
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More
Here is a little film that gives an overview of what we did in the Socialising the Genome project. Julian … More
The world reacted with shock as Angelina Jolie, Hollywood actress, UN Ambassador and world renowned beauty announced in the New … More
The American College of Medical Genetics (ACMG) has recently published recommendations for reporting incidental findings (IFs) in clinical exome and … More
A 35 year old woman, let’s call her Sarah, is estranged from her parents. After 20 years of no contact, … More
Having your genes studied is cheap (about $99) and easy (just spit here). And according to 23andMe (one of the … More
Your doctor knows you at increased risk of getting cancer. You’d want to know, right? Or maybe not. Researchers in … More