The accuracy of science in movies can be a contentious topic. For those “in the know”, suspending your disbelief (and … More
Category: WGCethics
The Evolution of the Genetic Counselling Profession
Tracking the development of the Genetic Counsellor role In 2020 the Wellcome Connecting Science Engagement and Society team explored the … More
An Important Era for Socialising the Genome
Genomics, Public Trust and Engagement “Genomics” – a scientific term previously considered most relevant to scientific research, is now a … More
I:DNA – an immersive exploration into the view of people living with genetic conditions
This multi-sensory art installation moves online In 2019, the Imagining Futures research by Prof Felicity Boardman, a professor in medicine … More
So Much More Than Just a Test, the introductory film to the Voices of Genetic Counsellors short documentary series, is an official selection for the 2020 Imagine Science Film Festival
Placing the role of Genetic Counsellors in the Spotlight We are proud to share that So Much More Than Just … More
Wellcome Genome Campus Society and Ethics Research Lead on a UK Citizens Assembly.
Wellcome Genome Campus Society and Ethics lead of a UK citizens assembly for gene-editing
Future of Genomic Research at Risk Without Greater Public Trust in How Genetic Data is Shared, Survey Finds.
The largest ever survey on global public attitudes towards genomic research and data sharing suggests that work is needed to … More
Genetic Counsellors: Walking on the genetics journey
Over the past three months the ‘Voice of Genetic Counsellors’ video series has enabled us to step into the shoes … More
Genetic Counsellors: Enabling Patients to Fostering Resilience
Turning patient stories into hope and resilience One of the main reasons people seek a genetic test is to establish … More
Genetic Counsellors: Helping Patients Cope with Bad Results
The art of caring in clinical practice For genetic counsellors it’s not simply enough to impart scientific knowledge, or to … More
Music of Life Short-film Selected for Raw Science Film Festival 2020
The Music of Life: What is a Gene? short-film selected to appear in the 2020 Raw Science Film Festival (Los Angeles, California).
Telling the Story of DNA
Genomics. Sequencing. Tracking. These are the buzzwords within COVID-19 science at the moment – describing how we map the DNA construction of the virus, how it’s mutating and where different strains are appearing.
Genetic Counsellors – Communicating Complex Messages
Receiving a confirmed diagnosis of a genetic condition can have a ripple effect, potentially affecting multiple generations of a single family.
Genetic Counsellors: An Important Part of Multidisciplinary Clinical Healthcare Teams
Genomethics discusses how genetic counsellors can help their colleagues learn about genetics
Genetic Counsellors: A unique skill set
Genetic Counsellors are pivotal to the interpretation of complex clinical concepts; possessing specialist skills and expertise to communicate genetic information … More
The duty of care: a genetic balancing act?
Genetic testing is becoming a standard part of UK healthcare, with plans to expand its use. But who does this information belong to, and who decides who it is shared with?
Genetic Counselling in Focus
The vital role of the Genetic Counsellor in their own words – Voices of Genetic Counsellors Video Series.
A collaborative project between Wellcome Genome Campus Society and Ethics Research and the Association of Genetic Nurses and Counsellors.
Rare Disease Film Festival 2020
What it is like to live with a rare disease? 99% of genetic conditions are classed as rare, meaning they affect fewer than 1 in 2,000 people. Currently, there are over 6,000 known rare diseases, and thanks to advances in genome sequencing new ones are being identified and described on a regular basis.
“Informed Consent” to edit embryos: what consent?
Richard Milne and Anna Middleton from the Society and Ethics Research group provide a commentary on informed consent and its … More
New Public Dialogue Highlights Hopes and Concerns for Genomic Medicine in the UK
A major new report based on a public dialogue around genomic medicine was launched last week. A Public Dialogue on … More
Genetopia – The compelling stories and tensions behind genetic testing
What springs to mind when thinking about genetic testing? You would expect the answer to be something about families, heredity, … More
Genetic Disability, Experience and the Sorting Society
Are we heading towards a future where genetic conditions are ‘screened-out’? Who gets to decide which conditions are screened for? … More
DNA and Big Data: be part of the conversation
The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have launched a new project to explore … More
The ‘Making Of’ GeneTube Project
Here is a little film that gives an overview of what we did in the Socialising the Genome project. Julian … More
Angelina Jolie tested for one gene, what about the other 20,000?
The world reacted with shock as Angelina Jolie, Hollywood actress, UN Ambassador and world renowned beauty announced in the New … More
‘No choice for you’ according to the ACMG
The American College of Medical Genetics (ACMG) has recently published recommendations for reporting incidental findings (IFs) in clinical exome and … More
Sexual abuse: Getting the Message Across
A 35 year old woman, let’s call her Sarah, is estranged from her parents. After 20 years of no contact, … More
DNA Sequencing – Can You Handle the Truth?
Having your genes studied is cheap (about $99) and easy (just spit here). And according to 23andMe (one of the … More
New, innovative survey
Your doctor knows you at increased risk of getting cancer. You’d want to know, right? Or maybe not. Researchers in … More